Stuff co.nz 8 December 2018
Family First Comment: “You were the one that saw her as a diagnosis and all we saw was our new precious daughter.” she said.
A US mum has written a powerful open letter to the doctor who said “sorry” after diagnosing her baby daughter with Down syndrome.
Texas mum Amber Rojas, who gave birth to daughter Amadeus in July, wrote on Instagram she would never forget the comment but had since forgiven the doctor.
“Dear Doctor, You may not remember me or my daughter but I will never forget you, but I forgive you,” she wrote. “You were the one who told me all the things she wouldn’t do; but you never told me the things she could. You were the one that told me my daughter couldn’t nurse because of her low tone and because of her heart defect, but what you don’t know is that she exclusively breastfeed for four solid months. I even had to bring her to work with me because she didn’t want anything else.”The doctor had also expressed concerns about Amadeus’ ability to gain weight, causing stress and anxiety for the family.
“You were the one that diagnosed her with Failure to Thrive and expressed your concerns of her gaining weight, but what you don’t know is that she is now one of the bigger babies in our birth class and in two weeks is turning 1,” Amber wrote. “You were the one who made the decision to give her a [nasogastric tube] because of your concerns and her weight gain causing a horrible oral aversion to the point that she couldn’t even put her own hands in her mouth.”
Fortunately, Amadeus overcame the oral aversion and was able to eat on her own. But regardless, Amber admitted the doctor still made her feel guilty about her parenting ability.